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Advancing Community-Guided Evidence

PCC Forum
Roundtable 2026
Welcome
Event Agenda

Keep the conversation going

If you were unable to attend the roundtable, had to miss portions of the discussion, or would like to revisit the session, we invite you to watch the recording and continue the conversation in the forum. Share your perspectives on the ideas, challenges, and opportunities raised during the discussion and learn from others across the PMD community.

DAY 1

Jun 4, 2026

Evidence Based Approaches to PMDD — Dr. Tory Eisenlohr-Moul, PhD

Session Goal

Review current treatment guidelines and explore how well they reflect patient experiences and research needs.

Discussion Questions

1. Where are current guidelines falling short?

  • Which guidelines are hardest to implement in real-world care? 

  • Are specific patient groups/scenarios that are poorly covered?

2. Where would comparative effectiveness data help the most in making decisions?

  • What treatments should we combine or sequence?

  • What type of outcomes should those studies prioritize?

Working Towards Better Treatments for PMDs — Dr. Sneha Chenji, PhD

Session Goal

Share survey findings and build a common understanding of patient and professional comparative clinical effectiveness (CER) needs.

Discussion Questions

1. Based on the needs assessment findings and today's discussions,

  • What should be the highest-priority treatment research questions for the next decade?

  • Which unmet needs or challenges should future research address first?

2. Roadmap clarity

  • What recommendations should be included in a roadmap for advancing comparative effectiveness research in PMDs?

  • What actions are needed in the next 1–3 years to move these priorities forward? What would make this roadmap actionable rather than theoretical?

DAY 2

Jun 5, 2026

Barriers & Facilitators to Getting Involved in Research: A Panel Discussion

— Dr. Jennifer Gordon & Sandi MacDonald

Session Goal

Identify common challenges that limit participation in PMD research from patient and professional perspectives. Highlight practical ways to support meaningful patient involvement in research.

Discussion Questions

1. Training implications

  • What do patients need to better engage in CER?

  • What do clinicians/researchers need to conduct more patient-centered CER?

  • What does “meaningful” patient involvement look like, beyond tokenism?

2. Practical supports

  • What should be standardized guidance in our CER training materials?

  • What would make research partnerships feel more equitable?

  • At what stages must patients be involved to truly shape outcomes?

The Future of PMD Research: A Panel Discussion

— Dr. Jessica Peters & Dr. Emilė Radytė

Session Goal

Introduce emerging research frameworks and discuss how they may shape future CER efforts. Explore how digital tools and technology could support patient-centered PMD research.

Discussion Questions

1. What should emerging research models or digital tools change how we design CER for PMDs?

2. What is one innovation we should intentionally integrate into our roadmap?

3. What does a truly patient-centered PMD CER study look like in practice?

This project is supported by the Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington Engagement Award (EACB-41974).